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| | La Regione Lombardia ha istituito un “Gruppo di Lavoro con funzioni di coordinamento operativo e di condivisione di strategie comuni per la prevenzione, la sorveglianza, la diagnosi, la terapia delle malattie rare”. Il Gruppo di Lavoro è composto da referenti della Direzione Generale Sanità, del Centro di Coordinamento, dei Presidi della Rete Regionale e delle ASL. |
| | Referenti DG Sanità Regione Lombardia |
| | Referenti DG Famiglia e Solidarietà Sociale Regione Lombardia |
| | Referenti Centro di Coordinamento
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| | Referenti Presidi della Rete
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| | Referenti ASL (Aziende Sanitarie Locali)
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| | Referenti Associazioni di Pazienti
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| | REFERENTI DIREZIONE GENERALE SANITÀ REGIONE LOMBARDIA |
| | Baraldo Gedeone
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| | Di Martino Elisabetta
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| | Fortino Ida
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| | Giuliani Paola |
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| | Merlino Luca
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| | Vanzini Cinzia
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| | REFERENTI DIREZIONE GENERALE FAMIGLIA E SOLIDARIETÀ SOCIALE REGIONE LOMBARDIA |
| | Corsini Giuseppe
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| | Discalzi Alessandro
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| | |
| | REFERENTI DEL CENTRO DI COORDINAMENTO |
| | Centro di Ricerche Cliniche per le Malattie Rare "Aldo e Cele Daccò"
Istituto Mario Negri, Ranica (BG)
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| | Titolare
Supplente | Daina Erica
Bresin Elena |
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| | REFERENTI DEI PRESIDI DELLA RETE |
| | BERGAMO
AO OSPEDALI RIUNITI DI BERGAMO |
| | Titolare
Supplente | Schieppati Arrigo
Piccichè Antonio |
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| | | | |
| | BOSISIO PARINI (LC)
IRCCS EUGENIO MEDEA - ASSOCIAZIONE LA NOSTRA FAMIGLIA |
| | Titolare
Supplente | Borgatti Renato
Grasso Rita
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| | | | |
| | BRESCIA
AO SPEDALI CIVILI DI BRESCIA |
| | Titolare
Supplente
| Buzi Fabio
Barni Chiara
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| | | | |
| | BUSTO ARSIZIO (VA)
AO OSPEDALE DI CIRCOLO DI BUSTO ARSIZIO |
| | Titolare
Supplente
| Monti Giuseppe
Allaria Pietro Maria
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| | | | |
| | COMO
AO SANT'ANNA DI COMO
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| | Titolare
Supplente | Zampolli Maria
Alfieri Giuseppina
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| | | | |
| | CREMA (CR)
AO OSPEDALE MAGGIORE DI CREMA |
| | Titolare
Supplente
| Buscarini Elisabetta
Menozzi Fernanda
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| | | | |
| | CREMONA
AO ISTITUTI OSPITALIERI DI CREMONA |
| | Titolare
Supplente
| Cavalli Pietro
Poggiani Carlo
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| | GALLARATE (VA)
AO S. ANTONIO ABATE DI GALLARATE
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| | Titolare
Supplente
| Perini Michele
Zaffaroni Mauro
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| | GARBAGNATE (MI)
AO GUIDO SALVINI DI GARBAGNATE MILANESE |
| | Titolare
Supplente
| Mattassi Raul
Vaghi Massimo
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| | LECCO
AO OSPEDALE DI LECCO |
| | Titolare
Supplente
| Beccaria Luciano
Bellù Roberto
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| | | | |
| | LEGNANO (MI)
AO OSPEDALE CIVILE DI LEGNANO |
| | Titolare
Supplente | Scarpellini Magda
Guastoni Carlo
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| | MANTOVA
AO CARLO POMA DI MANTOVA
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| | Titolare
Supplente | Superbi Piero
Capuzzo Enrico
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| | MILANO
AO - POLO UNIVERSITARIO LUIGI SACCO |
| | Titolare
Supplente | Pini Alessandro
Zuccotti Gian Vincenzo
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| | AO ISTITUTI CLINICI DI PERFEZIONAMENTO (PP.OO. BUZZI E C.T.O.) |
| | Titolare
Supplente | Ravaglia Romana
Massari Daniela |
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| | AO ISTITUTO ORTOPEDICO GAETANO PINI
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| | Titolare
Supplente | Zeni Silvana
Ingegnoli Francesca |
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| | AO OSPEDALE NIGUARDA CA' GRANDA
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| | Titolare
Supplente | Canesi Bianca Maria
De Juli Emanuela |
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| | AO OSPEDALE SAN CARLO BORROMEO
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| | Titolare
Supplente | Sinico Renato Alberto
Renoldi Piero |
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| | | | |
| | AO SAN PAOLO - POLO UNIVERSITARIO
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| | Titolare
Supplente | Riva Enrica
Paci Sabrina |
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| | CENTRO CLINICO NEMO - FONDAZIONE SERENA ONLUS
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| | Titolare
Supplente | Corbo Massimo
Lunetta Christian |
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| | | | |
| | FONDAZIONE IRCCS CA’ GRANDA OSPEDALE MAGGIORE POLICLINICO
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| | Titolare
Supplente | Maria D. Cappellini
Lalatta Faustina |
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| | | | |
| | FONDAZIONE IRCCS ISTITUTO NAZIONALE DEI TUMORI
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| | Titolare
Supplente | Casali Paolo
Bertulli Rossella |
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| | | | |
| | FONDAZIONE IRCCS ISTITUTO NEUROLOGICO CARLO BESTA |
| | Titolare
Supplente | Taroni Franco
Morandi Lucia |
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| | | | |
| | IRCCS ISTITUTO AUXOLOGICO ITALIANO |
| | Titolare
Supplente | Silani Vinzenzo
Giardino Daniela
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| | IRCCS SAN RAFFAELE |
| | Titolare
Supplente | Russo Gianni
Previtali Stefano |
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| | OSPEDALE SAN GIUSEPPE |
| | Titolare
Supplente
| Harari Sergio
Caminati Antonella
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| | | | |
| | MONZA (MB)
OSPEDALE SAN GERARDO DI MONZA |
| | Titolare
Supplente | Tagliabue Paolo
Parini Rossella
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| | | | |
| | PAVIA
FONDAZIONE IRCCS POLICLINICO SAN MATTEO |
| | Titolare
Supplente
| Merlini Giampaolo
Obici Laura |
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| | | | |
| | IRCCS FONDAZIONE ISTITUTO NEUROLOGICO NAZIONALE CASIMIRO MONDINO |
| | Titolare
Supplente | Ceroni Mauro
Veggiotti Pierangelo |
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| | | | |
| | IRCCS FONDAZIONE SALVATORE MAUGERI (VIA BOEZIO) |
| | Titolare
Supplente | Mora Gabriele
Kalliopi Marinou Aktipi |
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| | ROZZANO (MI)
IRCCS ISTITUTO CLINICO HUMANITAS DI ROZZANO
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| | Titolare
Supplente
| Nobile Orazio Eduardo
Mavilio Domenico
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| | | | |
| | VARESE
AO OSPEDALE CIRCOLO E FONDAZIONE MACCHI DI VARESE
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| | Titolare
Supplente | Larghi Andrea
Manfredi Luca
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| | | | |
| | REFERENTI ASL (AZIENDE SANITARIE LOCALI) |
| | BERGAMO |
| | Orsi Maria Pia
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| | Carrubba Concetta |
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| | BRESCIA |
| | Colombi Luisa |
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| | Cecchi Daniela |
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| | | | |
| | COMO |
| | Zuliani Corrado |
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| | Sabatino Giuliana |
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| | CREMONA
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| | Turco Adriana
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| | Forzani Francesco
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| | | | |
| | LECCO
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| | Rivolta Rosella |
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| | De Luca Paolo
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| | LODI
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| | Ancora Marisa |
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| | Grazzani Danilo
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| | MANTOVA
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| | Froldi Giancarla |
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| | Vetturelli Emanuela
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| | | | |
| | MILANO
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| | Migliavada Laura
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| | Comelli Silvia
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| | | | |
| | MILANO 1
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| | Cattaneo Sarah
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| | Malnis Daniela
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| | | | |
| | MILANO 2 |
| | Ruggieri Isabella
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| | Triberti Patrizia
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| | | | |
| | MONZA E BRIANZA |
| | Frigerio Adele |
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| | Lopiccoli Silvia
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| | | | |
| | PAVIA |
| | Dellagiovanna Mirosa |
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| | Nieri Simonetta
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| | SONDRIO |
| | Nolla Enrico
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| | Manca Giovanni Paolo
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| | VARESE
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| | Punginelli Maurizia
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| | Pisani Salvatore
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| | | | |
| | VALLECAMONICA E SEBINO
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| | Gari Silvia |
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| | Voglioso Isabella
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| | | | |
| | REFERENTI ASSOCIAZIONI DI PAZIENTI
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| | È prevista la partecipazione ai lavori dei referenti delle seguenti Federazioni di Associazioni per le Malattie Rare presenti in regione Lombardia:
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| | AO = Azienda Ospedaliera
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| | IRCCS = Istituto di Ricovero e Cura a Carattere Scientifico
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