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Referenti Rete Regionale Malattie Rare Print
   
 
 Le attività di coordinamento operativo e di condivisione delle strategie comuni in materia di malattie rare sono assicurate dai competenti uffici della D.G. Welfare, per il tramite e con il supporto dei referenti individuati da ciascun Presidio della rete regionale per le malattie rare, da ciascuna ATS (Agenzia di Tutela della Salute), dal Centro di coordinamento regionale per le malattie rare e da rappresentanti della Federazione Italiana Malattie Rare (FIMR) - UNIAMO e della Federazione Lombarda Malattie Rare (FLMR).
  
 Referenti DG Welfare Regione Lombardia
 Referente Centro di Coordinamento
 Referenti Presidi della Rete
 Referenti ATS (Agenzie di Tutela della Salute)
 Referenti Associazioni di Pazienti
 
 REFERENTI DG WELFARE REGIONE LOMBARDIA
 Alessandro Amorosi
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 Matteo Corradin
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 Federica Falcone
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 Ida Fortino
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 REFERENTE PRESSO IL TAVOLO TECNICO INTERREGIONALE
 Daria Bettoni
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 REFERENTE DEL CENTRO DI COORDINAMENTO
 Centro di Ricerche Cliniche per le Malattie Rare "Aldo e Cele Daccò"
Istituto di Ricerche Farmacologiche "Mario Negri" IRCCS, Ranica (BG)
 Erica Daina This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
 
 REFERENTI ATS (AGENZIE di TUTELA della SALUTE)
 ATS DELLA CITTA' METROPOLITANA DI MILANO
 Katia Albo
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 ATS DELL'INSUBRIA
 Tiziana Bellia
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 ATS DELLA BRIANZA
 Paola De Grada
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 ATS BERGAMO
 Rosanna Risucci  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
  
 ATS BRESCIA
 Franca Finadri  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
  
 ATS PAVIA
 Mirosa Dellagiovanna  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
  
 ATS DELLA VALPADANA
 Cecilia Donzelli  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
  
 ATS DELLA MONTAGNA
 Enrico Nolla   This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
 
 REFERENTI ASSOCIAZIONI DI PAZIENTI
 Federazione Italiana Malattie Rare (FIMR-UNIAMO)
 Tommasina Iorno  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
  
 Federazione Lombarda Malattie Rare (FLMR)
 Flavio Bertoglio  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
 
 

REFERENTI DEI PRESIDI DELLA RETE

 BERGAMO
OSPEDALE PAPA GIOVANNI XXIII di Bergamo
 Maria Lucà
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 OSPEDALE DI TREVIGLIO
 Marinella Carpo  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
   
 OSPEDALE BOLOGNINI DI SERIATE
 Fabio Pace  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
   
 ISTITUTI OSPEDALIERI BERGAMASCHI - POLICLINICO SAN MARCO di Zingonia
 Massimo Camerlingo  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
    
 BRESCIA
SPEDALI CIVILI DI BRESCIA - OSPEDALE DEI BAMBINI
 
Angela Tincani
Raffaele Badolato

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 I.O. FONDAZIONE POLIAMBULANZA di Brescia
 Renato Candrina   This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
    
 OSPEDALE DI MONTICHIARI
 Sergio Bove  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
    
 CENTRO CLINICO NEMO - FONDAZIONE SERENA ONLUS di Brescia
 Massimiliano Filosto
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 COMO
OSPEDALE S. ANNA - S. Fermo della Battaglia
 Angelo Selicorni  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
    
 OSPEDALE VALDUCE di Como
 Mauro Turrini
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 CREMONA
OSPEDALE DI CREMONA
 Bruno Drera  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
    
 OSPEDALE DI CREMA
 Elisabetta Buscarini   This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
    
 LECCO
OSPEDALE DI LECCO
 Roberto Bellù  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
    
 IRCCS INRCA - Istituto Nazionale di Riposo e Cura per Anziani di Casatenovo
 Achille Bianchi
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 OSPEDALE DI MERATE
 Nicoletta Manzocchi  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
    
 IRCCS EUGENIO MEDEA - ASSOCIAZIONE LA NOSTRA FAMIGLIA - Polo di Bosisio Parini
 Maria Grazia D'Angelo
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 LODI
OSPEDALE DI LODI
 Paola Cerani
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 MANTOVA
OSPEDALE DI BOZZOLO
 Francesco Ferraro
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 OSPEDALE DI MANTOVA
 Piero Superbi  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
    
 MILANO
CASA DI CURA DEL POLICLINICO di Milano
 Massimo Corbo
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 IRCCS CENTRO CARDIOLOGICO MONZINO di Milano
 Piergiuseppe Agostoni
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 CENTRO CLINICO NEMO - FONDAZIONE SERENA ONLUS di Milano
 Valeria Ada Sansone
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 FONDAZIONE IRCCS CA’ GRANDA OSPEDALE MAGGIORE POLICLINICO di Milano
 Flora Peyvandi
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 FONDAZIONE IRCCS ISTITUTO NAZIONALE DEI TUMORI di Milano
 Paolo Casali
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 FONDAZIONE IRCCS ISTITUTO NEUROLOGICO CARLO BESTA di Milano
 Davide Pareyson

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 IRCCS FONDAZIONE SALVATORE MAUGERI di Milano Via Camaldoli
 Christian Lunetta  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
    
 IRCCS ISTITUTO AUXOLOGICO ITALIANO
 Vincenzo Silani  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
    
 IRCCS ISTITUTO EUROPEO DI ONCOLOGIA di Milano
 Nicola Fazio
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 IRCCS OSPEDALE SAN RAFFAELE di Milano
 Gianni Russo
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 OSPEDALE DEI BAMBINI V.BUZZI di Milano
 Luigina Spaccini
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 OSPEDALE FATEBENEFRATELLI E OFTALMICO di Milano
 Eliana Parente
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 OSPEDALE LUIGI SACCO di Milano
 Maurizio Gallieni
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 OSPEDALE NIGUARDA di Milano
 Emanuela De Juli
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 OSPEDALE SAN CARLO BORROMEO di Milano
 Simone Tonietti
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 OSPEDALE SAN GIUSEPPE di Milano
 Sergio Harari   This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
    
 OSPEDALE SAN PAOLO di Milano
 Maria Paola Canevini
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 PRESIDIO OSPEDALIERO CTO di Milano
 Anna Zecchinelli
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 PRESIDIO OSPEDALIERO GAETANO PINI di Milano
 Francesca Ingegnoli
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 OSPEDALE E. BASSINI di Cinisello Balsamo
 Alessandra Salvioni  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
    
 OSPEDALE DI GARBAGNATE MILANESE
 Massimo Vaghi
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 OSPEDALE DI LEGNANO
 Carlo Guastoni  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
    
 OSPEDALE DI MAGENTA
 Emanuela Venegoni  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
    
 IRCCS ISTITUTO CLINICO HUMANITAS di Rozzano
 Eduardo Nobile Orazio   This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
    
 IRCCS POLICLINICO SAN DONATO MILANESE
 Alessandro Pini  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
    
 IRCCS S. MARIA NASCENTE - FONDAZIONE DON CARLO GNOCCHI ONLUS di Milano
 Anna Castagna
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 HUMANITAS S. PIO X di Milano
 Pietro Rosetta
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 MONZA E DELLA BRIANZA
OSPEDALE SAN GERARDO di Monza
 

Federico Pieruzzi
Serena Gasperini

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 OSPEDALE DI VIMERCATE
 Milena Caglio
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 OSPEDALE DI DESIO
 Ignazio Santilli   This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
    
 PAVIA
FONDAZIONE IRCCS POLICLINICO SAN MATTEO di Pavia
 Laura Obici  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
    
 IRCCS FONDAZIONE ISTITUTO NEUROLOGICO NAZIONALE CASIMIRO MONDINO di Pavia
 Luca Diamanti
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 ISTITUTI CLINICI SCIENTIFICI MAUGERI - IRCCS di Pavia Via Maugeri
 Luca Chiovato
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 SONDRIO
OSPEDALE DI SONDALO
 Pietro Viggiani  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
    
 OSPEDALE DI SONDRIO
 Pierpaolo Parravicini
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 VARESE
OSPEDALE F. DEL PONTE di Varese
 Massimo Agosti
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 OSPEDALE DI CIRCOLO E FONDAZIONE MACCHI di Varese
 Rosario Casalone
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 OSPEDALE DI BUSTO ARSIZIO
 Eligio Gandini  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
    
 OSPEDALE DI GALLARATE
 Isidoro La Spina  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
    
 OSPEDALE DI SARONNO
 Francesco Saccardo  This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
   
 IC = Istituto Clinico
 IRCCS = Istituto di Ricovero e Cura a Carattere Scientifico