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| | Le attività di coordinamento operativo e di condivisione delle strategie comuni in materia di malattie rare sono assicurate dai competenti uffici della D.G. Welfare, per il tramite e con il supporto dei referenti individuati da ciascun Presidio della rete regionale per le malattie rare, da ciascuna ATS (Agenzia di Tutela della Salute), dal Centro di coordinamento regionale per le malattie rare e da rappresentanti della Federazione Italiana Malattie Rare (FIMR) - UNIAMO e della Federazione Lombarda Malattie Rare (FLMR). |
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| | Referenti DG Welfare Regione Lombardia |
| | Referente Centro di Coordinamento
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| | Referenti Presidi della Rete
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| | Referenti ATS (Agenzie di Tutela della Salute)
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| | Referenti Associazioni di Pazienti
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| | REFERENTI DG WELFARE REGIONE LOMBARDIA |
| | Alessandro Amorosi
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| | Federica Falcone
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| | Ida Fortino
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| | REFERENTE DEL CENTRO DI COORDINAMENTO |
| | Centro di Ricerche Cliniche per le Malattie Rare "Aldo e Cele Daccò"
Istituto di Ricerche Farmacologiche "Mario Negri" IRCCS, Ranica (BG)
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| | Erica Daina |
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| | REFERENTI ATS (AGENZIE di TUTELA della SALUTE) |
| | ATS DELLA CITTA' METROPOLITANA DI MILANO |
| | Maria Elena Gattoni
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| | ATS DELL'INSUBRIA |
| | Tiziana Bellia
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| | ATS DELLA BRIANZA |
| | Paola De Grada
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| | ATS BERGAMO |
| | Rosanna Risucci |
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| | ATS BRESCIA |
| | Franca Finadri |
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| | ATS PAVIA |
| | Silvia Vecchio |
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| | ATS DELLA VALPADANA |
| | Gabriele Crivellaro
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| | ATS DELLA MONTAGNA |
| | Enrico Nolla |
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| | REFERENTI ASSOCIAZIONI DI PAZIENTI |
| | UNIAMO Federazione Italiana Malattie Rare ONLUS |
| | Tommasina Iorno |
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| | Federazione Lombarda Malattie Rare (FLMR) |
| | Flavio Bertoglio |
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| | REFERENTI DEI PRESIDI DELLA RETE |
| | BERGAMO
OSPEDALE PAPA GIOVANNI XXIII di Bergamo |
| | Maria Lucà
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| | OSPEDALE DI TREVIGLIO |
| | Marinella Carpo |
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| | OSPEDALE BOLOGNINI DI SERIATE |
| | Fabio Pace |
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| | ISTITUTI OSPEDALIERI BERGAMASCHI - POLICLINICO SAN MARCO di Zingonia |
| | Massimo Camerlingo |
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| | BRESCIA
SPEDALI CIVILI DI BRESCIA - OSPEDALE DEI BAMBINI |
| | Angela Tincani Raffaele Badolato
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| | I.O. FONDAZIONE POLIAMBULANZA di Brescia |
| | Renato Candrina |
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| | OSPEDALE DI MONTICHIARI |
| | Sergio Bove |
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| | CENTRO CLINICO NEMO - FONDAZIONE SERENA ONLUS di Brescia |
| | Massimiliano Filosto
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| | COMO
OSPEDALE S. ANNA - S. Fermo della Battaglia
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| | Angelo Selicorni |
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| | OSPEDALE VALDUCE di Como |
| | Mauro Turrini
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| | Villa Santa Maria SCS - Tavernerio (CO) |
| | Daniele Grioni
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| | CREMONA
OSPEDALE DI CREMONA |
| | Bruno Drera |
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| | OSPEDALE DI CREMA |
| | Elisabetta Buscarini |
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| | LECCO
OSPEDALE DI LECCO |
| | Roberto Bellù |
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| | IRCCS INRCA - Istituto Nazionale di Riposo e Cura per Anziani di Casatenovo
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| | Achille Bianchi
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| | OSPEDALE DI MERATE |
| | Nicoletta Manzocchi |
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| | IRCCS EUGENIO MEDEA - ASSOCIAZIONE LA NOSTRA FAMIGLIA - Polo di Bosisio Parini |
| | Maria Grazia D'Angelo
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| | LODI
OSPEDALE DI LODI |
| | Paola Cerani
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| | MANTOVA
OSPEDALE DI BOZZOLO
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| | Francesco Ferraro
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| | OSPEDALE DI MANTOVA
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| | Piero Superbi |
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| | MILANO
CASA DI CURA IGEA - DIPARTIMENTO DI SCIENZE NEURORIABILITATIVE di Milano |
| | Massimo Corbo
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| | IRCCS CENTRO CARDIOLOGICO MONZINO di Milano |
| | Piergiuseppe Agostoni
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| | CENTRO CLINICO NEMO - FONDAZIONE SERENA ONLUS di Milano |
| | Valeria Ada Sansone
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| | FONDAZIONE IRCCS CA’ GRANDA OSPEDALE MAGGIORE POLICLINICO di Milano |
| | Flora Peyvandi
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| | FONDAZIONE IRCCS ISTITUTO NAZIONALE DEI TUMORI di Milano |
| | Paolo Casali
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| | FONDAZIONE IRCCS ISTITUTO NEUROLOGICO CARLO BESTA di Milano |
| | Davide Pareyson |
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| | IRCCS FONDAZIONE SALVATORE MAUGERI di Milano Via Camaldoli |
| | Christian Lunetta |
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| | IRCCS ISTITUTO AUXOLOGICO ITALIANO di Milano |
| | Vincenzo Silani |
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| | IRCCS ISTITUTO EUROPEO DI ONCOLOGIA di Milano |
| | Nicola Fazio
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| | IRCCS OSPEDALE SAN RAFFAELE di Milano |
| | Gianni Russo
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| | OSPEDALE DEI BAMBINI V.BUZZI di Milano |
| | Luigina Spaccini
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| | OSPEDALE FATEBENEFRATELLI E OFTALMICO di Milano |
| | Eliana Parente
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| | OSPEDALE LUIGI SACCO di Milano |
| | Maurizio Gallieni
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| | OSPEDALE NIGUARDA di Milano |
| | Emanuela De Juli
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| | OSPEDALE SAN CARLO BORROMEO di Milano |
| | Simone Tonietti
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| | OSPEDALE SAN GIUSEPPE di Milano |
| | Sergio Harari |
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| | OSPEDALE SAN PAOLO di Milano |
| | Maria Paola Canevini
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| | PRESIDIO OSPEDALIERO CTO di Milano |
| | Anna Zecchinelli
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| | PRESIDIO OSPEDALIERO GAETANO PINI di Milano |
| | Francesca Ingegnoli
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| | OSPEDALE E. BASSINI di Cinisello Balsamo |
| | Alessandra Salvioni |
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| | OSPEDALE DI GARBAGNATE MILANESE |
| | Francesco Bini
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| | OSPEDALE DI LEGNANO |
| | Lucafrancesco Di Toma
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| | OSPEDALE DI MAGENTA |
| | Emanuela Venegoni |
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| | IRCCS ISTITUTO CLINICO HUMANITAS di Rozzano |
| | Eduardo Nobile Orazio |
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| | IRCCS POLICLINICO SAN DONATO MILANESE |
| | Alessandro Pini |
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| | IRCCS S. MARIA NASCENTE - FONDAZIONE DON CARLO GNOCCHI ONLUS di Milano |
| | Anna Castagna
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| | HUMANITAS S. PIO X di Milano
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| | Pietro Rosetta
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| | MONZA E DELLA BRIANZA
FONDAZIONE IRCCS SAN GERARDO DEI TINTORI di MONZA |
| | Federico Pieruzzi
Serena Gasperini |
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| | OSPEDALE DI VIMERCATE |
| | Milena Caglio
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| | OSPEDALE DI DESIO
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| | Ignazio Santilli |
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| | PAVIA
FONDAZIONE IRCCS POLICLINICO SAN MATTEO di Pavia |
| | Laura Obici |
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| | IRCCS FONDAZIONE ISTITUTO NEUROLOGICO NAZIONALE CASIMIRO MONDINO di Pavia |
| | Luca Diamanti
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| | ISTITUTI CLINICI SCIENTIFICI MAUGERI - IRCCS di Pavia Via Maugeri |
| | Flavia Magri |
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| | SONDRIO
OSPEDALE DI SONDALO |
| | Paolo Pozzi
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| | OSPEDALE DI SONDRIO |
| | Pierpaolo Parravicini
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| | VARESE
OSPEDALE F. DEL PONTE di Varese |
| | Massimo Agosti
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| | OSPEDALE DI CIRCOLO E FONDAZIONE MACCHI di Varese |
| | Fausto Sessa |
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| | OSPEDALE DI BUSTO ARSIZIO |
| | Eligio Gandini |
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| | OSPEDALE DI GALLARATE |
| | Isidoro La Spina |
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| | OSPEDALE DI SARONNO |
| | Francesco Saccardo |
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| | IC = Istituto Clinico
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| | IRCCS = Istituto di Ricovero e Cura a Carattere Scientifico
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Referenti Rete MR