Regione Lombardia Regione Lombardia

Centro di Coordinamento della Rete Regionale per le Malattie Rare

Le attività di coordinamento operativo e di condivisione delle strategie comuni in materia di malattie rare sono assicurate dai competenti uffici della D.G. Welfare, per il tramite e con il supporto dei referenti individuati da ciascun Presidio della rete regionale per le malattie rare, da ciascuna ATS (Agenzia di Tutela della Salute), dal Centro di coordinamento regionale per le malattie rare e da rappresentanti della Federazione Italiana Malattie Rare (FIMR) - UNIAMO e della Federazione Lombarda Malattie Rare (FLMR).

Referenti DG Welfare Regione Lombardia
Referente Centro di Coordinamento
Referenti Presidi della Rete
Referenti ATS (Agenzie di Tutela della Salute)
Referenti Associazioni di Pazienti

Referenti DG Welfare Regione Lombardia
Alessandro Amorosi This email address is being protected from spambots. You need JavaScript enabled to view it.
Federica Falcone This email address is being protected from spambots. You need JavaScript enabled to view it.
Ida Fortino This email address is being protected from spambots. You need JavaScript enabled to view it.

Referenti del Centro di Coordinamento
Centro di Ricerche Cliniche per le Malattie Rare Aldo e Cele Daccò
Istituto di Ricerche Farmacologiche Mario Negri IRCCS, Ranica (BG)
 
Erica Daina This email address is being protected from spambots. You need JavaScript enabled to view it.  
Sara Gamba  

Referenti ATS (Agenzie di Tutela della Salute)
ATS DELLA CITTA' METROPOLITANA DI MILANO
Maria Elena Gattoni This email address is being protected from spambots. You need JavaScript enabled to view it.
ATS DELL'INSUBRIA
Tiziana Bellia This email address is being protected from spambots. You need JavaScript enabled to view it.
ATS DELLA BRIANZA
Paola De Grada  This email address is being protected from spambots. You need JavaScript enabled to view it. 
ATS BERGAMO
Rosanna Risucci This email address is being protected from spambots. You need JavaScript enabled to view it.
ATS BRESCIA
Valentina Nervi This email address is being protected from spambots. You need JavaScript enabled to view it.
ATS PAVIA
Silvia Vecchio This email address is being protected from spambots. You need JavaScript enabled to view it.
ATS DELLA VALPADANA
Gabriele Crivellaro This email address is being protected from spambots. You need JavaScript enabled to view it.
ATS DELLA MONTAGNA
Enrico Nolla This email address is being protected from spambots. You need JavaScript enabled to view it.

Referenti Associazioni di Pazienti
UNIAMO Federazione Italiana Malattie Rare ONLUS  
Tommasina Iorno This email address is being protected from spambots. You need JavaScript enabled to view it.  
Federazione Lombarda Malattie Rare (FLMR)
Flavio Bertoglio This email address is being protected from spambots. You need JavaScript enabled to view it.  

Referenti dei Presidi della Rete
Bergamo
Ospedale Papa Giovanni XXIII di Bergamo
Maria Lucà This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Ospedale di Treviglio
Marinella Carpo This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Ospedale Bolognini di Seriate
Fabio Pace This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Istituti Ospedalieri Bergamaschi - Policlinico San Marco di Zingonia
Massimo Camerlingo This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Brescia
Spedali Civili di Brescia - Ospedale dei Bambini
Angela Tincani This email address is being protected from spambots. You need JavaScript enabled to view it.
Raffaele Badolato This email address is being protected from spambots. You need JavaScript enabled to view it.
   
I.O. Fondazione Poliambulanza di Brescia
Renato Candrina This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Ospedale di Montichiari
Sergio Bove This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Centro Clinico NeMO - Fondazione Serena ONLUS di Brescia
Massimiliano Filosto This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Como
Ospedale S. Anna - S. Fermo della Battaglia
Angelo Selicorni This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Ospedale Valduce di Como
Mauro Turini This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Villa Santa Maria SCS - Tavernerio (CO)
Daniele Grioni This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Cremona
Ospedale di Cremona
Bruno Drera This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Ospedale di Crema
Elisabetta Buscarini This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Lecco
Ospedale di Lecco
Roberto Bellù This email address is being protected from spambots. You need JavaScript enabled to view it.
   
IRCCS INRCA - Istituto Nazionale di Riposo e Cura per Anziani di Casatenovo (LC)
Achille Bianchi This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Ospedale di Merate
Nicoletta Manzocchi This email address is being protected from spambots. You need JavaScript enabled to view it.
   
IRCCS Eugenio Medea - Associazione La Nostra Famiglia - Polo di Bosisio Parini (LC)
Maria Grazia D'Angelo This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Lodi
Ospedale di Lodi
Paola Cerani This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Mantova
Ospedale di Bozzolo
Francesco Ferraro This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Ospedale di Mantova
Veronica Pedini This email address is being protected from spambots. You need JavaScript enabled to view it. 
   
Milano
Casa di Cura Igea - Dipartimento di Scienze Neuroriabilitative di Milano
Massimo Corbo This email address is being protected from spambots. You need JavaScript enabled to view it.
   
IRCCS Centro Cardiologico Monzino di Milano
Piergiuseppe Agostoni This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Centro Clinico NeMO - Fondazione Serena ONLUS di Milano
Valeria Sansone This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico di Milano
Flora Peyvandi This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Fondazione IRCCS Istituto Nazionale dei Tumori di Milano
Paolo Casali This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Fondazione IRCCS Istituto Neurologico C. Besta di Milano
Davide Pareyson This email address is being protected from spambots. You need JavaScript enabled to view it.
   
IRCCS Fondazione S. Maugeri di Milano - Via Camaldoli
Christian Lunetta This email address is being protected from spambots. You need JavaScript enabled to view it.
   
IRCCS Istituto Auxologico Italiano di Milano
Vincenzo Silani This email address is being protected from spambots. You need JavaScript enabled to view it.
   
IRCCS Istituto Europeo di Oncologia Milano
Nicola Fazio This email address is being protected from spambots. You need JavaScript enabled to view it. 
   
IRCCS Ospedale San Raffaele di Milano
Gianni Russo This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Ospedale dei Bambini V. Buzzi di Milano
Luigina Spaccini This email address is being protected from spambots. You need JavaScript enabled to view it. 
   
Ospedale Fatebenefratelli e Oftalmico di Milano
Eliana Parente This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Ospedale L. Sacco di Milano
Maurizio Gallieni This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Ospedale Niguarda di Milano
Emanuela De Juli This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Ospedale S. Carlo Borromeo di Milano
Simone Tonietti This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Ospedale San Giuseppe di Milano
Sergio Harari This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Ospedale S. Paolo di Milano
Maria Paola Canevini This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Presidio Ospedaliero CTO di Milano
Anna Zecchinelli This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Presidio Ospedaliero Gaetano Pini di Milano
Francesca Ingegnoli This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Ospedale E. Bassini di Cinisello Balsamo
Alessandra Salvioni This email address is being protected from spambots. You need JavaScript enabled to view it. 
   
Ospedale di Garbagnate Milanese
Francesco Bini This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Ospedale di Legnano
Lucafrancesco Di Toma This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Ospedale di Magenta
Emanuela Venegoni This email address is being protected from spambots. You need JavaScript enabled to view it.
   
IRCCS Istituto Clinico Humanitas di Rozzano (MI)
Eduardo Nobile Orazio This email address is being protected from spambots. You need JavaScript enabled to view it.
   
IRCCS Policlinico San Donato Milanese
Alessandro Pini This email address is being protected from spambots. You need JavaScript enabled to view it.
   
IRCCS S. Maria Nascente - Fondazione Don Gnocchi Onlus di Milano
Anna Castagna This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Humanitas San Pio X di Milano
Pietro Rosetta This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Monza e della Brianza
Fondazione IRCCS San Gerardo dei Tintori di Monza
Federico Pieruzzi This email address is being protected from spambots. You need JavaScript enabled to view it. 
Serena Gasperini This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Ospedale di Vimercate
Milena Caglio This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Ospedale di Desio
Ignazio Santilli This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Pavia
Fondazione IRCCS Policlinico San Matteo di Pavia
Laura Obici This email address is being protected from spambots. You need JavaScript enabled to view it.
   
IRCCS Fondazione Istituto Neurologico Nazionale Casimiro Mondino di Pavia
Luca Diamanti This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Istituti Clinici Scientifici Maugeri - IRCCS Pavia (Via Maugeri)
Flavia Magri This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Sondrio
Ospedale di Sondalo
Paolo Pozzi This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Ospedale di Sondrio
Roberto Palazzolo This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Varese
Ospedale F. Del Ponte di Varese
Massimo Agosti This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Ospedale di Circolo e Fondazione Macchi di Varese
Stefano La Rosa This email address is being protected from spambots. You need JavaScript enabled to view it.
   
Ospedale di Busto Arsizio
Eligio Gandini This email address is being protected from spambots. You need JavaScript enabled to view it. 
   
Ospedale di Gallarate
Isidoro La Spina This email address is being protected from spambots. You need JavaScript enabled to view it. 
   
Ospedale di Saronno
Francesco Saccardo This email address is being protected from spambots. You need JavaScript enabled to view it. 

IC = Istituto Clinico
IRCCS = Istituto di Ricovero e Cura a Carattere Scientifico